Is it blue
and black or white and gold? Unless you've been hiding from the world for the
past few days you are probably aware I am referring to a photo of a dress that
has been flooding the internet. It shows an optical illusion
showing how two peoples eyes can perceive colour in very different ways.
Sensory
differences are something those on the autism spectrum are often all too
familiar with and Sensory Processing Disorders are a common part of the condition.
This week, while the debate about the dress colour rages, I wanted to share
with you how many of us on the spectrum experience lots more than just colours
differently.
Sitting
around with friends late in the evening the conversation often turns to deep
and random questions to ponder. How do you explain the colour ‘red’ to a blind
person? How would a deaf person understand the concept of ‘loud’?
Interesting thoughts to mull over but for us sat around the table, well we were
all sensing the world in the same way right? Well not quite….
From seeing
the a red apple our eyes send a message along out circuit of nerves where out
clever brain cells get to work at deciphering it into something meaningful.
Parts of your brain will fire into action and tell us that what we are seeing
is indeed red, that’ll tell us if we like the colour, how bright it is, if it’s
edible, if it could harm us an so on – all from a single signal from out eyes.
This is what senses are all about, out brains translating the world around us
into some meaningful information. There are so many more senses than the well
known sight, sound, taste, touch and smell. We sense heat, time, balance, body
position (close your eyes and touch your nose – how did you know where your
hand was in space? This is called Proprioception), the list goes on. Our brain
does a fantastic job at turning all of this into useful info to help us
navigate the world around us.
We all have
slight variations on how our brain handles this flood of information. Perhaps
when looking at the red apple your brain say to you, ‘Ah look, a tasty fruit, I
feel hungry,’ or maybe it says,’ Yeuk, I don’t like apples,’ either way your
brain has almost instantly recognised the abject and told other parts of your
body how to respond. But what if this doesn’t happen, what if our brain
translates it more like, ‘an apple is edible but red is danger, release lots of
adrenaline ready to run’
For those
on the autism spectrum how we experience senses are often very different from
the average person. Instead of taking a logical path through the nervous system
the message goes for a wander and gets all confused. This is what happens in
sensory processing disorder; a common attribute that affects many on the autism
spectrum but one that is frighteningly often overlooked. The effects can
broadly fall into three groupings:
Oversensitive:
Too much information reaches the brain.
Try this example out:
Listen to the sounds in the room you’re in now. Can you hear
traffic outside? Perhaps there is a clock ticking? There might be people
talking or a radio on nearby. Listen closely, can you hear the computer fan
humming or the light buzzing?
Chances are you could identify each new sound and focus on
it separately? With an oversensitive neuro-connection all of these sounds would
come at once in a big wall of noise, your poor brain just doesn’t stand a
chance at making any meaningful distinctions here thereby rendering
communication impossible.
Undersensitive:
Too little information reaches the brain.
Try this example out:
Rest your hands down in front of you. What can you feel?
Perhaps it’s a wooden desk or the soft fabric of your trousers? Is it warm or
cold? What is it’s texture light, maybe it’s smooth or rough?
Can you now describe what you just felt? Now try this
wearing gloves. How many much of this would be different. You would probably
miss most of the textures. With an under sensitive connection the messages sent
to your brain get filtered out and lost.
Confused
Senses: The information sakes a somewhat ‘alternative’ route through the brain.
Sometimes instead of taking the direct path the signal takes
a detour and gives the brain a rather different message. This is called
synesthesia. One sense gets mixed up with another. The results can be random.
With synesthesia might be able to ‘taste’ colours or ‘see’ sound. Perhaps we
should be asking if the dress 'tastes' of strawberry or lemon, instead of the
colours! The benefits of this can be huge – think of the music abilities if you
can see each note! For me it’s less than helpful, – certain textures and
visuals make me feel very nauseous. I’m not telling you which, too many of my
friends would use this for practical jokes on me!
To what
degree and which senses are affected vary drastically in each person and is
dictated by a roll of the genetic dice. My sensory difficulties are something
I’ve long been aware of but not something I thought could be improved. I was
offered a chance to undergo sensory integration therapy and I snapped up the
opportunity.
Sensory
Integration Therapy doesn’t aim to ‘cure’ the imbalances in the senses, rather
it aims to regulate and moderate the more distressing aspects. When the brain
gets over or under saturated by messages it can just switch it’s self off in a
meldown or shutdown which is something best to be avoided. In a previous
post I wrote about my experiences of meltdown, check it at this link.
The sensory
integration sessions start by working through many varied tests to establish which
senses are affected in what way. This allows a targeted therapy plan to be put
in place. After all if you have an oversensitive sense of touch it needs
desensitising and vice versa!
The therapy
itself is a scattering of different techniques and tools to balance the senses.
It’s caused much amusement for my colleagues at work after each session as I
return to the office armed with various weird and wacky new gadgets to try out.
The biggest
surprise to me what how much two surprising senses were affecting me:
Vestibular (balance & coordination) and Proprioception (position in space).
I’ve always known that these were under sensitive for me. I can fall over a
flat surface and can’t catch a ball to save my life. What I didn’t realise was
how pivotal these were for keeping everything else in check.
Now, bear
with me on this one, let’s think about an iPhone. There are plenty of apps and
you use them they drain battery power and you need to recharge the phone. If
the battery runs out the phone turns off. Simple. Some apps use vastly more
battery than others so as the battery gets low we moderate our usage. With low
battery I probably won’t use music or video apps or take photos etc. Now lets
think of the iPhone as our brain and the apps are our senses. It is the
Proprioception and vestibular senses that are the most draining on our
batteries, and as we get low on power so the others start to fall away faster
and faster until we just ‘turn off’
I’m sorry
if that analogy was a bit obscure, but it is one that helped me to understand
the situation. In summary our brain spends more time and effort keeping the
Vestibular and Proprioception in check than it does with the other senses, so
when it’s getting tired (or in my case, having an uphill struggle as I’m under sensitive
in those areas) it’s other things like sound, taste, smell etc that start to
close down first as my brain looks for ways to free up resources. Biologically
this kind of makes sense. As a cave man faced with danger knowing my body
position and maintaining balance would be essential in the fight or flight
scenario. For me today and now it gives a clue as to the way forward. Train my
brain to use up less effort managing these senses and the others will all fall
in line as being easier to deal with.
In coming
posts I’ll be discussing more about how my new experiences in the world of
Sensory Integration and letting you know hoe I’ve been getting on. I’ll also
write a post to review some of the equipment I’ve been trailing. Do you have
any equipment or techniques you’d like to be added to the review? If so then
please let me know.
This was a
subject that I am only just beginning to learn about and I hope you’ve kept
with me until this point! If not, then you’re not actually reading this
apology, but sorry for loosing you anyway! So assuming you’re still here
reading this than thank you and I do hope you found this post of interest.
Please feel free to share this post and get in touch with your thoughts and
experiences.
We are all different, aren't ' we? I could not do Grade 10 Geometry, even if they had held a gun to my head. Too bad the system does not make more allowances for these differences. I would not have been allowed to go right on to University, but I did get in the back door, later, as a mature student. - Nanaimo, B. C. Canada.
ReplyDelete<-----This Aspie likes your Blog!
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteI have a motor-neuron condition, a non-fatal ALS relative that mostly affects the legs. As Grandpa developed it later in life (50-ish and Mom around the time I was born, and it proceeds gradually, and because I don't question things that are normal to me (I heard the term MS used for Grandpa's condition a few years before, at 14, I was talking to a friend with mild cerebral palsy and said my mother was also disabled, and didn't know what she had. Never occurred to me to ask. Knew she told children whose mothers saw her with a child and so thought she would be a safe bet to come up to and say "Would you mind if Susie asks you a question" that all of her life the part of her brain that told her legs what she wanted them to do didn't work right- she probably did have Cerebral Palsy before the genetic thing started developing but we aren't sure. So I knew why she used canes at home and the wheelchair when we were shopping, and she and Grandpa handled their limitations well, so it didn't occur to me to ask. A therapist in my early teens who totally missed the ASD, as several others would until I brought it up with my current one, thought I was in major denial, but I'd never seen Mom or Grandpa not disabled...) I use 2 canes now, or a wheelchair when out shopping. I go to physical therapy and am in a pool with water up to my shoulders, and walk on the underwater treadmill and do other exercises against the water's resistance, and where my legs can do things without supporting my weight. My other therapist is working with me on interpersonal communication, outside scholastic stuff, and I have explained to the PT about the ASD, as well as I could. Because I can count to 20 as I raise my leg or I can talk, especially if I've expended the energy to have my ankle support my foot as it moves forward to walk for 17 minutes before we do the exercises. He asks an open question and I tell myself what number I was on, stop moving, process that he asked about Mom, figure out how she is and what level of the truth he's at, and figure out my response. Then try to remember where I was. Since the treadmill keeps going and I do have to concentrate on that ankle (too much or too little tension in the muscles and it hurts more than usual the next day) it takes longer to answer because I have to keep walking, but at least I don't have to count...
ReplyDelete