Welcome to Steve’s Aspie Adventures



Whether you are reading this as a parent, carer, friend or are on the spectrum yourself, a warm welcome to the blog and I’d welcome your comments. I was diagnosed with an autism spectrum condition as a teenager. Throughout my life this has brought unique challenges, deep lows but also very happy times. I hope with this blog I can share some of my experiences, challenges and successes with you. My hope is that it can help along the way at breaking down some of the fears, misconceptions, stereotypes that come hand in hand with Autism by giving an insight into what it’s like as an individual living with the condition.

At times when I’m affected most by my condition life can grind to a halt, but that has given me a drive to experience all I can when I’m feeling well. Travel brings a new perspective on life and the experiences it brings have made my good days even better and given hope in my bad days. For me it’s a metaphorical middle finger to a life-long condition. In my other blog (Roaming Steve) I share some stories of my travel and adventures.

I hope you enjoy reading this blog. Feel free to share this with your friends if you've found it helpful. I'd love to hear your thoughts, any topics you'd like to read about and own experiences so please comment or message me.


Please note, that in all my blog entries I can only relay my personal experiences and perspective. It is important to remember that every single person on the spectrum is an individual with a different story to mine. I have no medical expertise or training and am writing to share my personal experiences only.


Showing posts with label Communication. Show all posts
Showing posts with label Communication. Show all posts

Friday, 24 April 2015

Communication Confidence


Communication difficulties is possibly the most well known struggle that those on the autism spectrum face.

The aim of communication is to exchange information and ideas with others. It is an essential skill to have in life, whether we are simply communicating that we are say hungry or tired or engaging in more complex communications of a business negotiation or scientific research paper it is clear that communication skills are really quite important to all of us.

So what is it that makes communication hard for us aspies?

The trouble with communication is the way we are dealing with multiple streams of information at once and my brain struggles to interpret this.

Just think about the word ‘yes.’ It’s meaning is clear isn’t it? Well not quite. If it is said with a nod of the head it could mean that it’s a positive response. If the tone of voice raises at the end it could be a question (yes?). If you’ve just approached someone and they say ‘yes’ they are really saying ‘what do you want?’…..

The list goes on and it’s clear that even simple words change meaning depending on the context and tone they are spoken in. The same is true for text. If I SUDDENLY WRITE IN CAPITOLS you might think I’m being angry and shouting, or perhaps I’m just highlighting an important sentence for you to remember.

Most people simultaneously take in and understand these multiple messages and unspoken clues with little effort and can then respond the most appropriate way. For us aspies it’s often not the case and instead we need to consciously learn to read and understand the messages being given. In a way it is just like learning a foreign language. This is an analogy that has helped me greatly when I’ve found myself frustrated by communication difficulties. As a handy twist of fate, a fairly common aspie trait is a strong ability to learn and absorb information so learning to communicate fluently with the ‘native neurotypicals’ can be both fun and achievable, so long have patience and persistence. So where do we start?

I’ve listed a few pointers that have helped me along the way and I hope they help you too. At the end of this post I will use some example situations to get you started but intend to go deeper in further posts.

These are tips have worked for me in the past, but we all learn in different ways so please have fun adapting this to suit you and please feel free to add any tips you have found helpful to the comments section.

1: Who do you want to communicate with?

In the above examples I showed how communication varies greatly depending on the situation.

Before even starting to work out how and what to communicate we need to think about who you want to communicate with. Perhaps you want to be better at communicating with friends, or colleagues at work, or emails, or phone calls, the choice is yours.

2: Identify the Challenges

Now you have decided which style of communication you want to improve I’m going to ask you to do something important, but uncomfortable.

Make a list (either on paper on in your head) of what you find difficult about this. Be as critical and brutal as you like.

It feels very un-natural to be critical and negative when trying to learn something but actually I find this a helpful exercise. Usually we are encouraged to ‘think positively’ but actually for this process we need to be able to separate what we can already do and what we struggle with.

So perhaps you’re now sat looking at a list and feeling a bit defeated. Actually what you are looking at is a list of things we are going to learn how to conquer. We have identified our enemy and it’s time fight these challenges.

3: Set some Goals

Looking at our list of challenges we might start to feel overwhelmed, where do you even start?

What we want to do here is start to break down these issues even further and form a set of goals that are manageable.

Perhaps we have said that we find making friends hard because you don’t understand people. It would be a huge task to tell ourselves that we are going to suddenly have friends overnight, but perhaps we can break this down into smaller chunks. What do you need to learn here? Perhaps learning to better understand body language might help? Or learning some conversation starters? Building some self confidence to meet people? – these can all be made into smaller, more manageable goals. Instead of setting myself a challenge of being perfect at communicating with friends, I could say ‘this month I will try and learn how to start a conversation’ – this is achievable and a step towards my final goal.

What skills do you think might help you to achieve your goal and what skills do others seem to ‘just have’?

4: Learn – Study & Research

Now we know what it is we want to know how to do, how so we gain the skills to be able to do it? It’s time to get our academic heads on here and start to study.

What we are doing here is asking all the questions you were probably afraid to ask, but there’s no silly questions here and we have a great tool at our hands to help us along…. The internet.

The internet allows us access to vast amounts of information and it’s time to tap into this. What we are looking for is information and advice on the topic we are looking for. It is helpful for me to ask the question ‘how do you ...... ?’ as if I am looking to see what exactly it is the other person, this gives me clues as to what I can start to practice.


            Perhaps you want to learn how to improve eye contact – ask the internet ‘how do you      improve eye contact?’
           
            Perhaps you want to know how to invite a new friend over - ask the internet ‘how do        you invite a new friend over?’

            Perhaps you want to improve your writing skills - ask the internet ‘how do you     improve your writing skills?’

Can you see the theme developing here?

As we search we will come up against lots of information, so how do we know what is relevant? For this we have to give ourselves a filter. Do I find what I’m reading helpful? If yes, then I can consider it and move on – if not, scrap it and move on.

Having trusted people (perhaps a care worker, family member, support group or friend) to chat through ideas with is a great help too.

Some useful websites I’ve found are http://www.helpguide.org/, http://psychcentral.com/ and http://www.wikihow.com, but you can also have a look for ideas on YouTube and Google. Always remember though that you will simply be reading other peoples ideas, so if you do not agree with what you read or you try something out and it doesn’t work for you then simply leave it. If in doubt ask a trusted person for their advice.

5: PRACTICE! - Step out of your comfort zone

So by now we are brimming with knowledge about your new skill. Perhaps you now know the correct way to use newly learned phrase or can recite the rules on small talk etiquette, but you still come across as robotic or fake. This is because we need real practice with real people. This takes courage and persistence but is what moves us from knowing how to communicate to actually communicating naturally and comfortably.

Look for as many chances to practice what you learned in step 4 as possible – and don’t be afraid to get it wrong!

I’ve often found that I get great practice by going and staying at a youth hostel or joining a tour, even if it’s in my local city. A day spent with tourists has two advantages – As I’m around people from different areas a lot of my differences are immediately seen as being because I’m assumed to be from elsewhere and I start with a clean slate. I am also able to make as many embarrassing mistakes as I like fairly consequence free – I’ll never see them again!

The tricky part is that there is still some embarrassment and it’s still often a long and frustrating process but one that opens your horizons and has real results. The adventures you take add to the experiences you can then chat about in future. Volunteering in a charity shop gave me practice in speaking to the public AND a good story to share at a job interview. A weekend in a youth hostel in San Francisco put in the deep end learning to socialise in a Night Club, Coffee Shops and taught me to make small talk AND provided great storied to share with people when I get back.

Just by focusing on a small element of the overall issue we identified in part 1 we are building our confidence and having an adventure along the way.

6: Enjoy yourself

As you start to build your confidence then it is great to look back to what you want to try and improve next. We never stop learning and developing our skills and as you conquer your fears you can have a great time learning the skills you want to be able to communicate well.


I hope you have enjoyed this post and found it of help. I really look forward to hearing about the adventures you have as you learn new ways to communicate. Please feel free to share this post and leave comments.

I will be covering this topic in far more detail in future blogs so please feel free to let me know of any tips you would like to share or any topics you would like to read more about.


Friday, 27 March 2015

Communication Confusion

Crowded, hot and noisy marquees aren't my favourite place and I was feeling very overwhelmed just being here, crammed into this humid dome with 10000 others. I'd been invited by a friend and I'd decided to come to this weekend festival just to try something new, have a new experience. If it was terrible I could just go home! I tried to make an assessment about where to sit and decided that right at the front would be best as then I couldn't see the mass of other bodies! Perhaps at the back by the door would have been more logical but I went for it anyway. At the front I discovered a quiet area next to the sign language interpreter and settled myself down for the start of the celebration.

I've not given sign language much thought before, 'how would they interpret the music?' I wondered. While the crowd behind stood and sung with their voices, in front I watched as the song transformed into bold movement and expression as the sign language interpreter lead his followers into a depth of meaning in the song seemingly missed by the thousands who stood limply behind us.

It was truly beautiful to watch. The energy and passion spread and by the end of the weekend we were all dancing. For the first time in years I was using more than just my words to express my feelings, I was using my whole self, it was liberating. 

That weekend taught me an important lesson about communication. Communication involves far more than just words.

It is easy to pinpoint the main causes of communication difficulties the deaf community face, but how does this relate to me, an aspie? 

As an aspie my brain takes in information in a slightly different way to most and growing up this gave me a slightly different communication style. Add into this the relentless negative responses when you get it wrong, it's no wonder communication can be hard!

When communicating our aim is to share information with others, feelings, desires, thoughts, information..... As humans we do this in full Technicolor, using our words, tones, voices, ears, body language, eyes, facial expressions, it all pains a picture to give the full meaning intended. Most people learn how to juggle all of this subconsciously, but my aspie brain is more into creating neat stacks of information and goes for the quickest and most direct route. This produces an often cold and robotic response that often misses the point.

Just think about the word 'yes' - depending on the tone and volume it's said, the inflection and the speaker's body language and context of the word it could mean pretty much anything! 

          Yes shouted angrily could mean I'm busy go away! 

          Yes? could be asking what do you want?

          Yes! sarcastically could even mean no!

Without any clues however the word 'yes' is only going to mean 'yes' - confusion is not surprising! I end up frustrated wondering why 'yes' can't just mean 'yes'!?


In many ways it is like comparing different languages. We may both be speaking English, but the meaning is getting distorted leading to confusion all around. It often feels as though I am in the wrong for not being understood but actually this isn't the case and it really shouldn't be a blame game here. I simply have a different way of communicating - a different language!

Changing my thinking around to this has really helped me tackle my own communication struggles. Instead of telling myself that I 'Can't' communicate, I see it as an opportunity to learn.







It can often feel like everyone else should meet me in the middle here but in reality it is a lot easier to learn how to communicate in as many ways as I can rather than expecting literally everyone to do it my way. It takes time and practice but is surprisingly rewarding. Simply typing questions like 'How to start conversations' into Google brings you so much information, so have a look for yourself and see what you can find.

There are of course times you really do need to have someone communicate on your level and this is fine too. I find it has helped me to be able to script and practice ways of asking for this. Lecturing someone on how something 'SHOULD be done because I have AUTISM' doesn't seem to go down well, but toning it down and perhaps saying, 'please could you write that down for me' or 'I'm sorry I have difficulty using the phone, I will make the arrangements with you via email' are ways of getting the point across without being too confrontational.

It really is a huge topic and I just wanted to write this post as an introduction this week. I will be continuing this topic in the future to cover far more detail. I'd love to hear from you about your experience and any particular aspects of communication you would like to be covered more in upcoming posts. 

I started this post with a story about sign language and thought I would try and find a nice video to end this week's post with. I came across this video, A version of Cyndi Lauper's True Colours recorded by Artists Against Bullying and signed in ASL by the Ontario Rainbow Alliance of the Deaf. I hope you find it as inspiring as I did.






Friday, 31 October 2014

10 Phrases that mean something very different to aspies


It's not a secret that I take things very literally. It's a common trait for us aspies to not understand when something is

meant to be taken seriously or is just a saying, and this can create some confusion. What might be just a simple request or statement can lead me to blankly staring at you with a quizzical expression on my face or partaking in some rather bizarre behaviour. But why? We've got our wonderfully quirky and bizarre language to thank for that! Have you ever stopped and thought about how random some of our everyday sayings are? This week I've compiled a list of the 10 sayings that mean something very different to my literal way of thinking. So lets get started, make yourself comfortable and...

1. Take a seat...

Take it where? Why would you want me to take a seat, is that not stealing? Oh, I guess that you want me to be seated so I'll sit down. That's when you say...

2. You alright?

Why wouldn't I be alright? Ah yes this is just a greeting, umm what's the correct response....'you alright mate?' - of course, silly me, but I'd still like to answer your random greeting-question and actually tell you if I'm alright. You try and make things better by saying...

3. Every cloud has a silver lining...

Well no they don't. Clouds aren't known for their silver content, you never tend to hear weather forecasts warning of low pressure systems bringing in heavy silver accumulation, turning to gold at high altitude. That would certainly make jewellery cheaper. Speaking of the weather it is raining hard today. Yes you say...

3. It's raining cats and dogs....

No, it's definitely not. It's raining water. How are you mistaking that wet stuff out there to be furry pets? It's not unheard of for there to be isolated fish or frog showers but not cats and dogs. Do you need to 'take a seat' as you say, I think you might be hallucinating. You don't seem impressed with my observations and tell me to...

6. Put a sock in it...

Put a sock in what? What purpose will putting my socks anywhere other than on my feet have exactly? I guess I better take my socks off and wait for further instructions. You seem exasperated and tell me to stop wasting time and...

4. Pull your socks up...

Whoa, now you just told me to put my socks in something and now you're cross because you want me to pull them up? Seriously dude, what's your fascination with my socks? As I put them back on you notice how great they look ( I have fabulous socks!) and compliment them by saying that they're...

7. The bees knees...

No, they're not. There is no comparison between bees knees and anything other than bees knees. How my fantastic socks (or indeed anything else) could be described as being 'the bees knees' is beyond me. Knees aren't even a bee's best feature. I'd go for their bright colours or efficient pollen collection ability. Why then is it OK for you to compare my splendid socks with bees knees but I'd be the odd one if I say 'hey Jimmy I think your new phone is as great as a bees pollen collection ability!' Actually this is what I might start to say from now on. You laugh and say I'm...

8. taking the piss...

Right so lets use my powers of deduction here, by 'taking the seat' you meant 'sit down' so by 'taking the piss' you want me to sit in the..... oh..... Yeurgh. WHY WOULD YOU ASK THAT?!

No! you say, it means you were being silly; you put me right about this one fast and tell me to...

9. Lighten up...

You saying I'm fat.... well I guess I could do with getting a bit lighter, I have been eating a lot of cakes recently. No? That's not what you meant, Perhaps you want the room to 'lighten up' I'll turn on the lamp. Anyway now it's now coming to the end of my blog post, We say our goodbyes and as I leave the room you say...

10. Break a leg

Charming...



Thank you for taking the time to read this list. I'd love to hear your stories about taking things literally. Perhaps you have some funny stories or experiences to share. Please feel free to comment and share this post.

Sunday, 7 September 2014

10 Things You Shouldn’t Say to Non Autistic Person



There are many things that I do and say that can range from amusing to exasperating to those around me. That’s the joy of having a brain that’s hard wired slightly differently to that of the average person. In my post 10 things you shouldn’t say to an aspie I took a light hearted look at some of the things that have been said to me that have been less than helpful, but I also recognise that sometimes the things I say aren’t helpful in return. It’s great to recognise that the way I understand other’s communication is strained, but it’s also important for me to recognise that the way I communicate back is also potentially different to yours. Communication works both ways after all. Here is a look at the top 10 things I sometimes say that hasn’t had the response or affect I’d expected.

So anyway let me start by say ‘Hi, How are you?’

1: Answering honestly ‘How are you?’

‘Not so good’ I reply, ‘I didn’t sleep well last night as it was hot. My bedroom doesn’t cool down very well so I was up at 4am. Otherwise I’m not too bad but I’ve had a few concerns on my mind lately about the increase in water rates and whether I'm on the best phone tariff. At the moment I’ve been trying to figure out whether to visit a friend this weekend as they live a long way away but at the same time I’d like to see them. I am however really enjoying writing this blog about life with autism.’

-          puzzled look back

‘Oh sorry, fine thanks and how are you?’

You see to me the question ‘How are you?’ requires an answer. In true aspie style it is so easy for me to automatically bombard the poor recipient with exhaustive details about ‘how I am.’

This isn’t the askers’ intention. It is simply a greeting that requires no more than a simple ‘fine thanks, and how are you’ type response. Any more results in being given a very strange and scared look back from the person who asked!

2: How old are you?

So how old are you?

            You NEVER ask a woman her age!

                        Why?

                                    Why just women?

In settings where I’m surrounded by fellow aspies the question of age doesn’t appear to have such a stigma as it does out in the wider community. It is a simple factual statement. In reality as an adult, knowing someone else’s age has never been that important. I’ve always tended to either enjoy someone’s company or not (regardless or age or any other demographic). It’s when the conversation starts taking a bewildering dance around age that I have the tendency to just say ‘How old are you?’

            ‘I’m so much older than you!’

            ‘You look so young’

            ‘How old do you think I look?’

These questions will all likely result in me bluntly telling you how old you look or asking your age (you’ve asked mine in a roundabout way after all!) – if you don’t want to know then don’t ask.

I’ve been advised that telling everyone that they’re 21 is the best approach (Although it mystifies me why anyone would want to be 21 – I hated that age, 31 is so much better!)

3: Who are you voting for?

So people fought and died to give me a right to vote and live in a democratic country but I can’t talk about politics?

I can understand the reason that politics talk can lead to disagreements but I will and do openly talk about politics when an election is looming.

Filtering information from a random selection of leaflets on who to vote for is bewildering. I’d much rather balance my opinions by having open chats with those people around me who’s opinions I respect.

4: Do you have a faith?

This is one I both understand but also find frustrating. Whatever your faith may (or may not) be is a deeply personal thing that quite clearly can and does cause great conflict. Two people who hold opposing views but both have deep convictions justifying their respective stance can clearly clash on this issue so the reason for having discretion when discussing faith is clear.

The frustration comes for me when deciding where and when is an appropriate time. Faith has played a big part in my life. It has been a fluid journey with times of holding a Christian faith close to heart and more recently settling for more agnostic views. I have a genuine interest in faith and religions but exploring this has always felt restricted due to lack of open communication. I have no answers here, so lets quickly move on before arguments erupt or I’m smited by the almighty…..

5: Lets talk about the birds and the bees…

There are no birds and bees involved so at least there aren’t going to be any seagull sized bee hybrids, but if there were it’s certainly be much easier to talk about than the subject in question.

The unwritten rules on how, when and where sex can be discussed is so perplexing that it can be a huge minefield. Saying the wrong thing at the wrong time can not only lead to huge embarrassment but has the potential for much worse. A single statement that could be light banter in one setting could lead to formal action in another. Knowing the boundaries can be challenging enough for anyone. One thing is certain; no one seems to know how to talk about this. It’ll cover this more in a future post, but for now I’ll stick with the giant bee hybrids, they scare me less!

6: You don’t understand

Chances are you don’t, but then again at least you’re trying to relate? Saying ‘I know how you feel’ is often said and tends to illicit a blunt but factual statement back from me, ‘no, you don’t understand’

I’m seeing it as a whole and there is no way you can understand everything from my perspective, but by saying this I’m missing the point. You can understand and relate to certain emotions, situations or experiences I have (fully understanding the intricate details isn’t really relevant).

It’s probably best I reserve my judgement on your understanding and keep my mouth shut. After all, you may just understand far better than I give you credit for…

7: I don’t understand you

As above, but chances are I don’t understand either. Again I tend to look at the intricacies of things rather than just trying to relate. When faced with a situation I will quickly judge that I don’t understand you and say so. This gives one clear message – I’m aloof, am above your problems and un-empathetic. This is far from the truth and avoiding saying that I don’t understand you is wise.

Perhaps you’ve just split up with your girlfriend and are upset. I would feel unable to relate as I haven’t dated this particular girl, gone through what you’ve gone through, been on your journey – but I have split up with girls before and experienced the grieving process that follows. If I step back from the detail then I may find I do understand far better than I give myself credit for…

8: You’re wrong

There are certain subjects that I know a lot about. We all have areas like that. Our interests, hobbies, studies all give us an expertise somewhere. Even personal matters like your family or even your long term health issues are probably areas you personally can call yourself an expert in. I’ve studied fungi extensively (yes, I’m aware that this is strange) and unless you’re a seasoned mycologist then I will probably dismiss your knowledge on this subject as inferior. The difficulty is that no one wants to be told they’re wrong. If someone approaches me and informs me that all fungi are poisonous, instead of pompously dismissing them for making such an uneducated remark it helps to step back. Does their lack of knowledge affect me at all? No! Perhaps this is a good opportunity to have a chat about a topic that interests me. In turn they are guaranteed to have something of interest to tell me about a topic I know little about. Not saying ‘you’re wrong’ can open up very interesting new conversations.

9: Being direct about pretty much anything

An autistic tendency that doesn’t seem to blend well with the British societies' politeness is being blunt and direct. If there is a problem or difficulty I’d rather just say it than meander aimlessly around the subject.

‘You upset me’ Is confrontational, ‘My washing machine is broken so I’m stressed and don’t know how to get it repaired’ is pessimistic. Instead we have to weave around what we’re saying.

‘Hello, splendid day wouldn’t you agree! I wonder if you could advise me, my washing machine has broken. Have you got any recommendations for good repair centres? Isn’t it jolly good that we live in such a blessed position to not have to wash out clothes in a dirty river!’ or some such gibberish.

10: Talking about myself

Talking about myself comes naturally, I know a lot about myself. I can easily go into a never ending monologue that will put you in a coma given half a chance. I have to remind myself frequently that you really don’t need or want to know every last detail about my evening’s plans.

I was once set a challenge, try having a ‘you’ day. The challenge was simple; to not talk about myself for a whole day, even direct questions about what I’ve been doing should be turned around and directed back to the person asking.

‘How was your lunch?’

Instead of replying with the details of my lunch I could say, ‘Great thanks, what did you have today?’ Following this up with questions about their favourite foods or places to eat.

Sounds easy? It was actually quite challenging but very rewarding and it was a great way to connect more with those around me.



I hope this post has been of interest and shown how the challenge of communication is a two way street – but also a very rewarding one. I would be very interested in hearing your views on this topic. Please feel free to add your comments and share this post if you found it interesting.