'Everybody is on the spectrum somewhere'
I'm sure this statement is familiar to most of us. It's a
statement that many of us with, and indeed without an actual diagnosis may have
been told or perhaps said, but is it true?
I personally would answer that no we are not ALL on the
spectrum. I believe there is a clear boundary between having and not having an
ASD, and don't find the view that you can be 'a bit' autistic accurate or
helpful, and this is why...
Lets start by looking at what autism actually is. Autism is
a neurological condition affecting how the brains neurotransmitters communicate
and deal with information. It is a life long condition that cannot be cured. The
way it affects an individual can vary but the symptoms can be categorised into
groupings, this is where the term 'spectrum' comes in.
There is a common misconception that the word spectrum means
there is sliding scale from 'non-autistic / neurotypical' to 'severely
disabled'. This is not the case, it's more accurately a grouping of conditions
(eg. Classic Autism, Aspergers Syndrome, RETT Syndome, PDD NOS) each condition
sharing patterns of how the underlying neurological difference has caused an
effect, all under the umbrella of 'Autism Spectrum' The National Autistic
Society explains this as,
'It is a spectrum condition,
which means that, while all people with autism share certain difficulties,
their condition will affect them in different ways.'
One difficulty I have noticed in explaining autism to
someone is the fact it's a hidden disability. How ever much you stare at a
person you won't be able to see their neurotransmitters, so how can you tell if
they are different from yours? You can't, so it's the outward signs you'll see.
This is where it can get tricky.
With specialist equipment there are undeniable differences
clearly seen between those on the spectrum and those not. Brain scans show
distinctly different patterns between neurotypical and autistic individuals.
Another example is eye movement research which again clearly shows distinct
differences in how people on and off the spectrum process information. So this
seems clear cut, why would there be any doubt?
If you saw me having Sensory Overload, Shutdown, Meltdown,
in a non verbal state or stimming, you'd instantly say there was something
going on here that most people don't seem to experience, but I don't tend to
display those traits in public if I can help it! Instead you get to see effects
you can relate more to.
The social awkwardness, anxiety, confusion and general day
to day difficulties are actually experienced by everyone at some point. If I
said I feel so overloaded I just need to go to sleep I think most people could
relate to that. Again if I explain that if I'm stressed I get tongue tied you
could probably relate. How about shopping... the supermarket can be
overwhelming because it's so busy, yep I guess you've felt that too at times.
This gives the impression that these traits SHOW that someone has autism, so if
everyone can relate then everyone has a degree of autism?
Lets myth-bust this theory with the statement that social awkwardness
is a sign of autism. Just think back about your own experiences, how many times
have you said something you regretted afterwards? How many cringe worthy jokes
did you tell at the office party? How many times did you try to talk to your
crush and make a fool of yourself? You thought of a few didn't you? I guess we
all have a stock of encounters that make us squirm a bit when we remember them,
but does this make us all autistic? No, it makes us all human! These social
awkward moments happen to all of us, autistic or not, where the difference is
comes back to the pesky neurotransmitters. In an autistic brain they are so
busy processing the world in their own eccentric way that I often make social
faux-pas without even realising, on a daily basis. Imagine those embarrassing
moments you recalled earlier - now that is what 'mild' autism feels like when
socialising EVERYDAY. Even a quiet and uneventful evening out can result in a
bad meltdown for me (which is literally where part of my brain stops
functioning for a short while, similar to a seizure), if this is something
everybody experiences on a regular basis they certainly keep quiet about it! So
you still think you have mild autism?
So we've established that some traits of autism can be
related to by all. If I were to take the same approach here are some of the
conditions I must therefore have...
I have hypos when my blood sugar drops which means I must
have mild diabetes? Some days I have mood swings which means I must have both
mild bipolar and menopause? I have a headache right now which means I must have
mild brain tumour? Every day I get tired and go to bed which means I clearly
have mild ME? Doesn't work does it? Perhaps you thought this was a bit
insensitive and insulting to those with these conditions?
Yes it was insensitive, and that's how I feel about this
statement towards autism. To say that EVERYONE is autistic in some way creates
a number of problems for me.
By removing the distinction; removes the need for support
for those on the spectrum by saying that
they don't really have a condition requiring support or therapy. It belittles
the struggles faced by all those affected, however hidden it may be to you. It
also makes support conditional on the effects being clear and obvious. I can
tell you that when I'm having a hard time the last thing I want is to have to
justify my diagnosis to someone with no medical knowledge who has never seen me
at my worst!
It also creates a barrier to those not yet diagnosed. There
is enough stigma with autism and related mental health concerns as it is, so
please let's not create another one by dismissing someone's genuine struggles
by saying that we all go through it.
On the flip side however I do still see it as important to
recognise that regardless of diagnosis, many of the struggles I face as an
aspie can be related to and even shared by those not on the spectrum. Although
a strongly feel that there is a distinct divide separating those on and off the
spectrum, this is simply a realisation that I the condition is a real thing and
not a scary evil thing that should be used to create a gap between 'us' and
'them'. It is good to have the distinction when dealing with medical
interventions and support; but with friends and family? Often I will share an
experience I have had that I think of as being an 'autistic' trait only to find
a friend not on the spectrum also can relate. This is great to bring us closer
and our shared experiences and often different approaches to overcome obstacles
unites.
This to me embodies neurodiversity - the celebration that we
are all wonderful and valuable in our uniqueness - each and everyone of us
regardless of functional labels.
For me it is important to ring-fence and understand my
diagnosis as a medical and neurological thing that I (as a person) can take
control of, I find this helpful and beneficial in my own journey at coming to
terms with the diagnosis. Others take a very different view, and this is
totally fine. What is important is that we find our own way to understand what
the condition means to us.
In this post I've expressed strong views on why I don't
think we ALL have autism, but they are just that, my opinions, based on my
journey and experiences. Many have very different views and very different
reasons why they hold them true. There is no hard fast correct answer here and
I have presented you with my feelings, but how about you? Let me know your
thoughts, whether you agree or disagree, I'd be very interested in your
opinion, do YOU think we ALL have autism?
No comments:
Post a Comment