Should I tell them I'm Autistic? This question comes up
regularly and it's never an easy one to answer. Sensory Overload is hitting and
I feel myself building into a meltdown, I've started to draw attention to
myself and am acting odd. 'Should I say I'm autistic??' I panic, and excuse
myself by saying 'Sorry I'm just a bit drunk' and running off. This is a great
approach in a bar with friends but not ideal at work or when talking to the
police!
So when is a good time to disclose your condition? It varies
so much depending on circumstance and personal preference, but here is my top
five list of times I've found it helpful to come out of the autism closet....
1. Dating
'Shouldn't they like me for me, why do they need to know?'
Indeed, if you're looking for a quick hook-up then great but if you're in for
something long-term, well if you're an aspie then it's part of you that might
be relevant to let them in on at some stage. In a relationship my aspie
tendencies can make relationship dynamics a bit different to what might be expected. A
great example is if I'm not feeling good then I need alone time; yet in a
relationship there is an expectation to talk. Do I want to be leaving a girl
feeling like I'm rejecting her when I'm just trying to fend off a meltdown? No,
of course not! But with open communication it's easier to talk about these
situations. I try and approach the subject of autism early in the dating game.
'Hi I'm Steve, I'm autistic' will send 'em running, but casually steering the
conversation towards the subject after a few dates seems to work well. It also
gives a clue as to their preconceptions.
'I dated a guy once,
he was well fit, but then he said he was autistic. I was like yeaugghhh!'
This one clearly wasn't to be the love of my life - at least
I knew before getting too involved!
2. Work
Employment is a big issue and a big part of life. For me it
is a no brainer, my employers need to know! For many, the opposite response
would be heard. But why not be open with the people you probably spend most of
your day working alongside? Perhaps it comes down to this question...
'What if they discriminate!?'
Yes this is a real and ever present thought with employment.
The hard answer is, yes they might. It's a hard fact of life that people can
sometimes be small minded idiots and no amount of laws and legislation can
change that - this is exactly why I see it as essential to be open about it! Think
about it, a large portion of your life is spent at work. If your potential
management are unsupportive or discriminatory then perhaps it's better to find
out before accepting a job with them?
Assuming that you are not in possession of a magical neurocloaking
device which enables you to completely hide all aspie traits, it is likely that
at some point it will come out anyway. I feel more comfortable knowing I have
allies I can turn to if I get into difficulties. I've had many times in my
working life when I've had to address issues. It's never easy but when the
condition is already out in the open then it is easier to address the problem
directly. For instance simple communication difficulties can be addressed so
much faster if you aren't tiptoeing around not revealing yourself as autistic.
The benefits for me in disclosing this with management has
far outweighed any negatives I've ever encountered. Adjustments, flexibility
and genuine caring support from colleagues - all of which wouldn't have
happened if they hadn't have known.
Who and when to tell? I'd always say your line management
should know, but not necessarily all your colleagues. I think by posting this
blog everyone knows in my case, but for you, use your discretion and seek
advice from someone you trust.
When to tell? Again up to you, but Preferably before having a
meltdown at work. Believe me, having a meltdown at work if they haven't been
told about your condition is MESSY!
3. Police
You've just crashed the car and the police turn up. What do
you do? Have a meltdown probably! Any situation that involves the police will
probably be stressful in some way and acting odd at this stage is probably not
ideal. I carry an alert card in my wallet and car for this very reason. In the UK all police
officers are (should be at least) autism trained and this does at least give
you a bit of back up should they start getting heavy handed. As a meltdown can
be mistaken for drunkenness or violence to an onlooker it is really in your
best interests to find a way of alerting them that it's not before you get
pepper-sprayed and dragged away. This has never happened to me, but the alert
card is staying just in case...
4. Travel
Travel can be a very stressful thing and navigating
airports, train stations and bus depots triggers sensory overload. You are
trapped with bright lights, noise and people. By letting staff along your way
know of your condition you often find people go out of their way to ease your
journey. I always get pre-boarded on flights as this helps me settle before the
masses arrive. Sometimes it is possible to be met and escorted or found a quiet
room to wait.
5. Leisure Activities
I was always naturally private about my diagnosis. 'I don't
want charity' I'd say and would never use the word disabled. Until one day. I
don't know what it was but something flipped and I just thought why not! 'I'm
disabled!' I chirp while waving my disabled badge at everyone. Doors open,
prices drop. Bonus.
Sounds like a great discount scheme but it's actually very
helpful and allows for access to places and activities that otherwise would be
a strain. Take theme parks for example. Most offer a queue jumping scheme for
those with proof of disability. Sounds like a good perk but unnecessary? A 2
hour queue with 200 other noisy people with no clear way out with bright lights
on a hot day. OVERLOAD! For most it's an annoyance, but for me it could trigger
a meltdown very publicly that renders me out of action for weeks. I'd just have
to avoid that ride altogether. The queue jump makes it possible, and why not?
Shouldn't we get access to attractions as well?
Thank you for taking the time to read this list. Please I'd
love to hear your thoughts on where is and isn't good to disclose your
condition, let me know via Facebook or by adding a comment. If you've enjoyed
reading this please feel free to share it.
Very insightful and I agree with it.
ReplyDeleteSo do I! Right on the button. This should be required reading for professionals in the mental health/ASC services.
ReplyDelete